Learning Disabilities — Introduction

If you have been to Lipstick Wisdom (www.lipstickwisdom.com), you probably realize that I have a son with language based learning issues. Specifically he has expressive language issues as well as receptive language issues. That basically means that he has trouble with language concepts going in (learning) as well as expressing his thoughts coming out. I can tell you that navigating this requires constant vigilance and patience. He is such a joy and he is working so hard. We are lucky in that we are able to send him to a school that specializes in language based learning issues. Even so, I am in a constant dialogue with my son’s teachers and we are always brainstorming together on the best ways for him to achieve the next learning milestone.

So I know from firsthand experience how difficult it is to gather the information that is needed to understand if you or someone you love has learning issues. If you are seeking information on language based learning issues for yourself or someone you know, I have posted a series of interesting videos, articles and websites which explore and discuss language based learning issues at Lipstick Wisdom (http://www.lipstickwisdom.com/category/language-processing-learning-issues/).

Although I have read several books and many articles, I am still learning about this area every day. For instance, I recently learned that the definition of dyslexia has been expanded. I, like many others, understood dyslexia to be a condition where letters get reversed while reading making reading extremely difficult. It turns out that dyslexia includes all difficulties with accurate and/or fluent word recognition, and is characterized by poor spelling and decoding abilities. I went on several websites trying to better understand dyslexia. After doing some research, I was very confused as to the relationship between dyslexia and language based learning issues. Is it the same thing – is it different? Turns out that dyslexia is a subcategory of language based learning issues. Dyslexia is a learning issue primarily based on phonetics and is really focused on the written word. I have two graduate degrees and I could not figure that out from the websites I visited. I had to call my son’s school and ask one of the women there what it really meant!!

I share this because, in my opinion, too much of the information available online is too clinically based and does not offer enough practical information.

Although at Lipstick Wisdom, we are gathering the best information we can find to help you face a new life challenge, we want to develop a repository of practical knowledge or wisdom from those that have actually faced the life event being discussed. If you or anyone you know has any helpful advice that they can share on either language based learning issue diagnosis or treatment, please let me know. Or better yet, share the information on Lipstick Wisdom by writing your own blog post!

We are building a virtual directory of bloggers who share their experiences and wisdoms gained from living with learning disabilities. In addition, I have my video blog (“Karen’s Blog”) which shares my stories and practical advice based on my experiences with my son.

Thanks for coming to visit LipstickWisdom.com.

Warmly,
Karen

A Reminder of The Journey and A Punch In The Gut


The end of the school year is approaching and I don’t know who is more excited about the two week break between school and summer camp, my son or I.  We have not had a break from homework since August 2008.  A key component to overcoming his learning challenges is not only to learn specific strategies for reading, writing and math but repetition, repetition, and more repetition.

He has made tremendous progress this year!  I am so proud of him and his incredible hard work.  We do about 1.5 hours of homework 5 nights a week.  For second grade, this is a lot of work.  If anything, our son is going to have an incredible work ethic.  The words he can now read include anticipation, commissioned, audience and Constantinople!!  Wow – he has done so well.

Recently, the summer reading list came out in our school’s weekly newsletter.  I contacted our son’s teacher in order to get guidance on his independent reading level for the summer.  Well let’s just say it is not where I expected it to be.  Hence “the punch in the gut” in the title of this blog post.  I felt so deflated.  I just wanted to sit down and have a really good cry.

I reached out to his teacher and asked about his independent reading level and now I understand.  Learning challenges like everything else in life is about layers.  This year was a year of building the foundation.  He has strategies for decoding words he doesn’t know.  He has strategies for comprehending the material he is reading.  He has strategies for writing and answering questions.  He has strategies for paying attention and remaining engaged in the classroom.  All of this HAS resulted in tremendous progress.

The next layer that has to be attacked, however, is comprehension.  He is working so hard to decode and read and do, that his brain processing does not really have the room for full comprehension.  As we practice his strategies more, then the strategies themselves will become second nature so that he can grow into comprehending the material he is working with.

So once again I have to remind myself that “my framework” is not what is relevant.  Learning challenges, like everything else in life, is a journey that has to be broken down into manageable pieces.

He is working hard, he is making progress and he likes school.  It is all good.  So I was able to give myself a swift kick in the a—and remind myself of how proud I am of him.  I also decided that I am going to get ice cream for every night of those two weeks where we have a break!!

So until next time …. Take care.

What Is In Your Support Network?

Hi everyone! I know it has been a while since my last post. Life got to be too much and I had to step back from some things for a while.

Do you know how sometimes you know things but you don’t really realize things? Well I had one of those realization moments recently.

I feel like I have a fair amount of connectivity with other mothers. A lot of it is either online or connecting with those that I know in person through emails, texts and so forth. Being a working mother and a working mother of a child with special needs, I don’t really have a lot of time, often, for personal phone calls, lunches or even coffee get togethers.

I do consider myself lucky, however. I have family and friends who provide me with emotional support and listen. Although they listen, they don’t always understand or get what our family’s situation is all about.

I recently volunteered at my son’s school for a teacher appreciation luncheon. It is a great school that focuses on the types of learning challenges that our son has. I wanted to be there to get to know some of the teachers and administration better. The biggest benefit of me being at the luncheon, however, was the other moms there and their support of us and our particular challenges of our first year at this school. It made me feel so much better. They understand specifically the challenges that we are facing this year with the workload and the emotional stress. They have been through it and empathize. They validated the stress that I feel most nights.

It made me realize that having real life connections with individuals who have total knowledge and understanding of our challenges is important too and very powerful.

I am going to be a volunteer in my son’s library once a month for the remainder of the school year. I volunteered because my son really wanted me there. I am going to be the biggest beneficiary, however, because I will have personal time with other mothers who totally and unequivocally understand and empathize.

I call this localized support (I am a geek at heart) and I have come to realize that everyone should try to have a piece of this type of support within their support network.

Online, offline, localized … what do you think? What has been the most powerful type of support for you?

Until next time …. Take care

Executive Functioning — What the Heck is That??

One of the challenges associated with ADHD and ADD is “executive functioning”. I have talked about this before. This like so many other things is a confusing element to ADHD but one that I feel is really important to be aware of and necessary to understand the challenges of your child holistically. In fact, many experts in the field of ADHD/ADD are starting to suggest that ADHD be re-conceptualized as an “executive disorder” and deemphasize the focus on hyperactivity and attention. Problems with executive functioning are not limited, however, to only those with ADHD or ADD. Executive dysfunction sometimes is the only problem and sometimes is part of a larger problem.

The easiest way to think of executive functioning is that it is the administrative or managerial part of the human brain. Executive functioning has to do with organization, planning, self-control, and time management, for instance. Like anything else, any individual with executive functioning issues will have areas of strength and areas of weakness within the broad spectrum of executive functioning.
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Unlocking the Essence of Your Child

One of the areas where I constantly struggle is helping our son find his areas of talents or what I like to call, his essence. Our children are like my husband and I. We are good at a lot of things but not outstanding at any one thing. We are good athletics, we enjoy music, we like books and politics, we enjoy giving back to the community and so forth. We are not the next Rembrandt, Tchaikovsky, Michael Jordan or Mother Teresa. Nothing is glaringly obvious.

Couple this with the fact that most of the time and effort with our son is currently focused on academics. He is absolutely exhausted when he comes home from school. He works hard, thank goodness, and cooperates with his teachers and, new this year, he actually LIKES school. I have so much to be thankful about. But some days when he gets home from school, he looks like he has been through a war.

We value play time and are mindful of balancing work with play time. But we have over an hour of homework each night and it is very difficult to fit everything in. He does play sports on Saturdays and seems to enjoy it but it is not clear to us that sports is his THING either.

Why do I worry about this so much? Our primary goal with our son with everything we are doing is to develop is self confidence and his self esteem. That is starting to develop academically because we are able to send him to a school when he can learn differently than the mainstream and be successful. I want him so much to experience success in something outside of school that he truly loves.

Getting him to try new things is not easy. He gets anxious and worried about new activities. Often when we start up a new sports season, he has trouble with the first few weeks of the activity – it is a transitioning issue.

Maybe this worry is more about me than him? I just want so badly for something to come easily to him that he truly truly loves … given that he has to work so hard in the other areas of his life.

So this blog post is not a Karen offering a suggestion blog post – it is one where I am reaching out to you for help. Do you have any suggestions or thoughts?

  • How do we fit in the time for him to explore his interests?
  • When is the right time to pursue drum lessons or karate or whatever else?
  • Is maintaining a balance between play time and work time enough for laying the groundwork for future interests?
  • Do I need to just chill out and believe that with self-confidence and academic “success”, he will figure it all out?

Would love to hear from you regarding how you enable the “essence” of your child to shine through all of the struggles!!!

Visual Checklists and A Guinea Pig

MEET CHARLIE OUR GUINEA PIG

MEET CHARLIE OUR GUINEA PIG

As many of you know, having a child with ADHD or working memory issues creates a challenge when trying to get them to take responsibility for multi-instruction tasks. We have had a difficult time getting our son to be independent and to take on responsibility. Some of this is probably our fault. He works so hard with his learning disabilities and ADD that we probably baby him too much otherwise. However, he was begging – BEGGING for a guinea pig. Even though we really did not have ANY desire to have another pet in the house (we have a Havanese dog and a Beta fish), we decided to use the opportunity to teach responsibility and to increase his independence.

At the pet store, we made a very hard deal with my son. He had to take responsibility for caring for the guinea pig with my help. If he did not, then we were going to give the guinea pig away and he was going to have to pay us back for the cost out of his allowance. We emphasized the deal several times and made him repeat it back to us several times before we even bought the guinea pig. So we bought the guinea pig and named him Charlie.
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Ignore the Behavior, Not the Child From Can Mom Be Calm

The post can be found at the Can Mom Be Calm Blog

http://canmombecalm.blogspot.com/2009/09/ignore-behavior-not-child.html

This is an excerpt of the post …

My ABA Lead therapist and pretty much everyone else told me that I need to firm up on Spencer and ignore his attention-seeking behavior. This includes when he climbs on me, pinches, scatters, and throws things. I know that they are right. I believe it in my heart but gosh…. for an anxious person like me… ignoring is really so hard to do. “Ignore the behavior, not the child,” she said as she reminded me that I should praise his positive behaviors.

I hate to think that my child thinks of me as a toy but I guess it is partly true. Sometimes he pinches me and I am so used to it, that I don’t even say “ouch.” So then, Spencer will even say it for me, “Ouch?” like .. “Hey, how come you are not saying ‘ouch,’ I love it when you say that.”

I think that I can achieve “ignoring” as a behavior modification method if I can remember that “ignoring” is active. That is what was told to me in my parent training program for ADHD preschoolers at NYU Medical Center. They said that I shouldn’t ignore activities that are harmful to him, to others or to property but rather ignore attention-seeking behaviors like whining, nagging, and tantrums. (Tantrums are the hardest because of the neighbors downstairs but I will have to try.)

TO READ THE FULL POST PLEASE GO TO http://canmombecalm.blogspot.com/2009/09/ignore-behavior-not-child.html

“Taming the Homework Monster” from CanMomBeCalm

This post can be found at the Can Mom Be Calm Blog:

http://canmombecalm.blogspot.com/2009/10/kill-homework-monster.html

canmombecalm10-18-09

Before I was married, I didn’t believe I would be nothing other than a No-Shit Mom.

Okay, this is the second time I used an inappropriate word on my blog and so I apologize if anyone is offended but some words just say it all.

My kid was going to study, I told myself up until he was born. He would not be spoiled. And he would be able to speak at least three languages, one of them being Mandarin Chinese. (By the way, I am not Chinese American)

Even when you have typical children, I’m sure parents laugh at themselves when they compare their pre-baby goals to their actual goals after birth. Gosh, now my goals are not even anywhere close to him being multilingual! My goals are more like: Logan will stay in his seat for five minutes without being told to do so. Logan will make one non-school friend by the end of 2009. Of course, now I must share my personal goal which of course is: Jenn will no longer need anti-anxiety medication after 2010 and/or lose 20 pounds.

Anyway, this year Logan is in Big School and with that I am dragged into the world of Homework Hell. Ohmigosh, this No-Shit Mom is no match for the ADHD Homework Monster. The Homework Monster has daily ways to annoy you so much that in twenty minutes, you don’t care if your child wrote the letter “b” or “d.” Just get it done and go to sleep! Argh!

THE REST OF THE POST CAN BE READ AT: http://canmombecalm.blogspot.com/2009/10/kill-homework-monster.html

What Would I Want a Mother of a Typical Needs Child to Know

Recently a question was posed on the web which asked, as a mother of a special needs child, what would you want a mother of a typical needs child to understand? As a mother to both a special needs child and a typical needs child, I found the question very difficult to answer.

Recently there was a discussion question put out on the web which asked what I would want a mother of a typical needs child to know about mothering a special needs child. As a mother to both a typical needs child and a special needs child, this question is really difficult to answer. Our son has both learning disabilities and ADD.

I have to say that I have written and re-written my answer probably a dozen of times. Finally, I think my answer comes down to what I feel is obvious. What mothers of typical needs children, family and friends need to understand is that we, families of special needs children, need understanding and consideration of our situation. Not unlike those with physically visible handicaps, those with invisible to the eye special needs require consideration, accommodations, respect and understanding. Invisible special needs can make daily situations no less daunting than for those with physical handicaps.
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Making Homework Time Easier (ADHD, Learning Disabilities)

Homework can be a frustrating time for any parent. This is especially true if your child has ADHD or learning disabilities. Here I share some times I have gained from first hand experience that make homework time a lot easier and enjoyable. Good luck!!

For many of us parents, homework time can be a very frustrating part of the day. This is especially true for those of us who have children with ADHD or learning disabilities. How can you work with your child to make homework time easier? I call it the 3 R’s — Routine, Reward and Relax!!

First, if you can, meet with your child’s teachers with you child at the start of the school year. Present a united front and lay out expectations for the year and explicitly offer advice and options if the child is having trouble with the material (age appropriately). Set up a system to regularly communicate with the teachers. We use a communication notebook that goes back and forth to school every day.

2. Make homework a daily routine – at the same time and the same place. Make sure the environment is comfortable and appropriate and aids concentration and productivity. We use our kitchen table and make sure that we have all the materials on hand that we will need. We also make sure that no one else is in the room!

3. Set up a short term reward system. Points, poker chips, pretend money, stickers or something immediate for that day such as TV time or game time are all a good basis for a reward system. Children with ADHD are highly motivated by short term rewards which could be daily or weekly. Develop a system that works best for you and your child.

I have found with my son that the more visual the reward system, the better it works. Post it somewhere on your refrigerator or anywhere where it is in plain view. It reminds your child of what they are working towards.

4. Break down the homework into smaller tasks with breaks in between. Plan with your child what is to be done and when break are to be taken. Plan together what the activities will be during the short, timed breaks. Even within subjects, break down the homework into smaller, more manageable pieces. For instance, for math homework, only show one column of problems at a time.

5. When and if you child reaches a frustration point, take a break but make the break explicit. “You seem like you are getting frustrated. Let’s go take a break for 5 minutes and then come back to the work refreshed.

6. When homework is finished, have your child organize it and put it away in their back pack so it is ready to go for the next day.

7. This is a good time, too, to plan for the next day. Lunch, snacks and outfits are all next-day tasks that can be taken care of so that the morning routine is easier.

8. As your child gets older and more independent, transition from homework helper to homework coach. A homework coach helps with planning for homework and projects, discussing what needs to be done and offering guidance on breaking the tasks down, and offering encouragement.

So remember, it is Routine, Reward and Relax!! I hope your nights of homework go smoothly. Until next time …. take care.

Karen


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