According to discussions I have had with many doctors and therapists, no one should have to suffer through terrible side effects of ADHD medication. There are many medications to choose from and each one reacts differently to an individual’s body chemistry.

Putting your child on medication for ADHD or ADD is not an easy decision or one that should take lightly. I, however, have seen firsthand the power of what the medication can do for a child. It can have absolutely amazing results. I said on a recent post, “It’s almost like his brain is a lock and medicine is the key.” Unfortunately, however, medication is not effective for everyone. Some experts say that medication is not effective for some 20-30% of the ADHD population.

My family had many discussions with doctors and therapists before we decided to put our son on medication. Two critical pieces of advice that we were told over and over again are advice that I feel everyone considering medication for their child should know. First, each child responds individually to each medication and that it will probably take time and experimentation to find the right medication for your child. Secondly, it is absolutely not necessary to tolerate side effects which last for more than a few days.

There are many choices of ADHD medication both stimulant and non-stimulant based. If a child is having side effects from the medication which continue for more than a few days, consult your doctor and try another medication. Do not tolerate side effects – this is what we were told by both our doctor and the many therapists we spoke with which was about ten therapists – all extremely experienced with ADHD.
Read the rest of this entry »

This blog post can be found at “A Mom’s View of ADHD” http://adhdmomma.blogspot.com/2009/04/get-facts-or-shut-up.html.

 
I keep reading over and over articles, blog posts, etc. claiming that teaching ADHD kids consequences will “cure” their ADHD. Anyone who spreads this rubbish can’t possibly have ADHD, know someone with ADHD, or be a medical professional of any sort. They are just yet another conspiracy-theorist anxious to fuel the flames. They do get me in a tizzy but not the one they were hoping for. I get downright angry. If they were educated on the subject whereof they take great liberty to speak, they would know this belief is pure trash.

As a parent of an ADHD child, we hear it all: behavior problems are just bad parenting; if you punish them they will comply; every child can sit still and focus if they try hard enough; ADHD medications/stimulants just drug a child into submission; blah…blah…blah.

We knew there was something going on with Luke because

* we know we are good parents,
* we punished taking away privileges until he literally had no toys and had to earn them back a few at a time and he still couldn’t follow directions (or earn his toys back)
* he wanted desperately to follow directions and please his elders and was very sad a lot of the time because he couldn’t no matter how hard he tried
* he is the sweetest, most kind-hearted little boy around but he was constantly in trouble.

Now, I know perfectly well that my son’s ADHD is very real and not something that he can control on his own (at least not at 6 years old — I certainly hope he will learn to compensate and cope when he is older). He can’t just tell himself to calm down and sit still and pay attention and have it be so. For that is the definition of ADHD! An ADHD individual cannot control their impulses — something different is happening in their brain.

TO READ THE REST OF THIS POST, PLEASE GO TO http://adhdmomma.blogspot.com/2009/04/get-facts-or-shut-up.html.

This blog post can be found at “A Mom’s View of ADHD” http://adhdmomma.blogspot.com/2009/05/ugh-more-meds.html

 
Last week, Luke had his second checkup with the Behavioral & Developmental M.D. at the Olson Huff Center since being diagnosed with ADHD there Nov. 2008. At the first checkup in March, his Concerta dosage was increased and the doctor was concerned because he had lost 4 pounds. I was, of course, nervous about going in again. I knew if he had lost any more weight, the doctor would change his medication. I agree that he has to grow. But I was also nervous as to the outcome because both his teacher and I had begun to realize the Concerta was loosing effectiveness again (that’s how he got the increased dose the last time). I just don’t approach the unknown very willingly.

So he was weighed and measured and his blood pressure was taken. Then we waited for our turn with his doctor. I saw what his weight and height were at the time measured, but I didn’t remember what they were in March so I was on the edge of my seat when we finally got in with the doctor. Fortunately, he looked at his weight first. It was exactly the same as two months ago, down to the tenth of a pound: 47.7 pounds (he had been 52 pounds when diagnosed in Nov.). He actually grew 1.5 inches too. Yeah, he was growing!

When I mentioned that the Concerta was beginning to loose effectiveness again, I got the dreaded “this may be as good as it gets” spiel. Frankly, I am fine with his current behavior. It can be frustrating at times, but we have dealt with it for a few years and can deal with it again. What is bothersome is how much trouble and learning prevention ADHD causes at school. When his meds are working he does so great and I really want that greatness for him.

So Dr. S told me about Tenex. Tenex is a hypertension medication that is often prescribed to ADHD individuals when stimulants aren’t tolerated or don’t work well. It is not yet FDA-approved for children and for treating ADHD but that is going to happen later this year. It affects a certain chemical in the brain causing a “slow-down.” I didn’t like the idea of giving him two medications every day and I didn’t like the idea of giving him a medication for high blood pressure when his blood pressure is a-okay. But Dr. S explained that it helps with hyperactivity and impulsivity, the two ADHD symptoms that Luke was again struggling with. He said we could try it for a few days to 1) see if he could take it without severe drowsiness or other side effects and 2) see if it would help with the re-emerging symptoms. If so, great. We’ll continue to take it. If not, he’ll tell me how to wean him off of it (you cannot stop this medicine abruptly).

TO READ THE REST OF THIS BLOG POST, PLEASE GO TO http://adhdmomma.blogspot.com/2009/05/ugh-more-meds.html.

The post can be found at “A Mom’s View of ADHD” http://adhdmomma.blogspot.com/2009/05/is-high-metabolism-really-blessing.html.

I have wished for a higher metabolism my entire adult life. Once my lifestyle “settled down,” the fat also settled…on my stomach, hips, thighs… I have watched my husband eat like a horse (his serving size for Twinkies is 2-3 at a time, for example) over the last 12 years and not gain a pound. He is still under weight. I however, can think about chocolate (obsess really, but that’s another conversation) and gain weight. I am 40 pounds heavier than I was at age 21. A good 30 pounds overweight.

Now I am starting to wonder if a high metabolism is really such a blessing though. I mean, I am sure it would be great for me, but it is not beneficial to the men in my life, my hubby and son. The first time I heard that your body can metabolize your medications was last year, a couple months after my husband began getting remicaid infusions for his ankylosing spondilitis. The first couple months were great. The pain was down significantly over his previous medication, which had just stopped working after several months. But after 2-3 months on the new medication, it began loosing effectiveness as well. His rheumatologist immediately asked him about his eating habits. My husband, god love him, survives on a Coke diet (at least 6 cans) up until dinner. He eats nothing during the day and then eats dinner and doesn’t stop eating until midnight or later. So, the obvious question is, what will his body burn to make energy when it runs out of calories from the Coke? Ah, it will burn his medication. Ding, ding! That’s a problem. Getting him to eat is a problem too. For a few weeks after this revelation, he ate pre-packaged peanut butter crackers and cliff bars, several a day. But soon these two foods got tiresome and he fell back into his pattern of being too busy at work and on job sites far from food and not eating again. He had actually put on about 15-20 pounds during his high-calorie phase but had lost it all again by the time he went back for his last doctor visit six months later.

Mia’s wonderful comment on my last post, mentioning metabolism, triggered a revelation. If my husband’s body is burning his medication when he doesn’t eat or eat enough, can’t Luke’s little body be doing the same thing to his Concerta?

 
TO READ THE REST OF THIS POST, PLEASE GO TO http://adhdmomma.blogspot.com/2009/05/is-high-metabolism-really-blessing.html

The blog post can be found at “A Mom’s View of ADHD” http://adhdmomma.blogspot.com/2009/07/guilt-overload.html.

 
I am really feeling bad about giving my son medications for his ADHD this week. In months past, I have reminded myself that we give him medications so he can be successful and feel good about himself. We chose medication for HIM, not one bit for us. That reminder usually makes me feel better.

But this week I am overwhelmed by guilt and self-doubt. I wonder if we are just medicating him so he’ll fit in. So he’ll fit into a world he isn’t neurologically capable of fitting into without chemical intervention. This cannot be the reason. I celebrate individuality. But, helping him fit into the “ordinary”‘ world is what creates confidence, peace and joy for him that he lacked beforehand.

I remember his demeanor before he was diagnosed with ADHD and medicated in Nov 2008. He was sad and defeated, probably near a clinical depression at 5 years of age. It brings tears to my eyes to think of all the times he tried so hard to please his teachers, parents, and elders and, try as he might, he just couldn’t. I don’t want to go back there. That feels like parenting failure.

 
TO READ THE REST OF THIS BLOG POST, PLEASE GO TO http://adhdmomma.blogspot.com/2009/07/guilt-overload.html

This blog post is from ADHDMomma and can be found at
http://adhdmomma.blogspot.com/2009/10/is-adhd-medicine-key.html

Luke has been taking Vyvanse for 3 straight days now. He has tried a host of other medications, most recently Concerta. The Concerta was fantastic, a dramatic change, but lost effectiveness after a month or so.

Of course, I have mile-high hopes for the new medicine, for the Vyvanse. I want it to be a dramatic positive change worthy of giving him a serious medication daily. I am on the edge of my seat, fingers and toes crossed, holding my breath. While we have battled some with being really sleepy, that seems to be subsiding and we are seeing great results. He brought home a story he wrote in school yesterday (pictured below). I smiled so much my cheeks literally hurt. I gushed and gushed until his sister was so tired of hearing about it she left the room. It was far beyond any expectations I had for him. It was a full page of writing. I could read it. It made sense. He even used quotation marks around dialogue and had dialogue in his story to begin with. And he drew a full picture to go with it with lots of color and detail. It may not be amazing for a 2nd grader. In fact, I know it isn’t. But for my 2nd grader, my ADHD boy who struggles so much with handwriting and even the desire to write because of it, it is beyond amazing.

 
TO READ THE REST OF THIS BLOG POST ON ADHD MEDICATION, PLEASE GO TO http://adhdmomma.blogspot.com/2009/10/is-adhd-medicine-key.html

In this video I share what we have immediately seen with medication for our son’s ADD. It is a testimonial for anyone consider medication for their child.

I wanted to provide you with a quick update on our journey with ADD. As of a couple of weeks ago, we put our son on Adderall on a very low dose. The results have been immediate! Although I agree that ADHD and ADD are overused terms in our society, ADHD truly is a neurological disorder that can respond quite well to medication.

We were lucky. Our son responded immediately to the first medication we put him on. We realize that as he grows, we will probably need to modify or switch medications. Each medication’s efficacy is relative to each individual’s body chemistry.

Our first day that we put him on medication, we immediately noticed that he was much more task oriented than he had ever been; he was highly communicative and his responses to others were much more empathetic. This may sound like a silly example but on the first day of medication, he peeled an entire cucumber by himself and presented it at the dinner table. He had never done anything like that before.
Read the rest of this entry »

BEFORE MEDICATION

AFTER MEDICATION

NEED I SAY ANYTHING MORE??

We went to our local Children’s Hospital last week to get a second opinion on the ADD (ADHD – inattentive) diagnosis of our son. We had him tested through our school district in the late spring which originally led to the diagnosis and to additional insights into his learning issues.

A diagnosis of ADD is not surprising to me because of the running commentary from his teachers all year long and my observations. The toughest part to face is that this is going to be a lifelong struggle for him. The second toughest part to face is that many of the non-medical strategies that are often tried for kids with ADD have not helped my son. He is in a small group classroom setting, he has gotten both verbal and physical (tap on the shoulder) cues and visuals developed by his teacher to teach him to self monitor his focus and energy level. NOTHING has worked or helped.

He has gone to a new summer academic camp and the Director of Admissions observed my son on multiple occasions. He basically summed up my child’s attention level as fluctuating in and out constantly. I have done a tremendous amount of research on ADD and have had conversations with therapists and other parents. I have come to the conclusion that the most effective approach from my son will most likely be a combination of therapy and medicine.

I know we are about to embark on a whole new journey – one that scares the hell out of me — putting my son on prescription medication. I have heard amazing success stories and horrible tragedies. I know that I only feel this journey to a certain level at this point because I am not yet handing a stimulant to my son with a glass of juice to swallow and fundamentally change his chemistry.

In doing this, however, I do KNOW a couple of things: First, my son has pretty significant learning issues and school is very difficult for him. I am considering giving him the medication so that he can be more AVAILABLE to learn and so that he can experience success and develop confidence. Second, it takes time and patience to find the right medication. Everyone’s body chemistry is different and we have to go into this knowing that we will need to give ourselves and the doctor some time to figure out the best approach. Third, my husband and I know our child best. No medical doctor or therapist will ever know our son as well as we know him. We will go into this with our eyes wide open and never stop being his biggest supporter, his advocate and his biggest fan.

I will share with you as well progress on our journey. If you want to hear another family’s perspective and thoughts, please go to www.adhdmomma.blogspot.com (including http://adhdmomma.blogspot.com/2009/07/more-medication-changes.html and http://adhdmomma.blogspot.com/2009/07/guilt-overload.html). Penny is a wonderful writer and gives incredible insights into their journey and shares significant wisdom.

Until next time ….

Karen